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Traci
you sound like me. I had the rash 3 years ago it cleared up with dapsone and now is back worse than ever. It is on my legs, thighs, back, chest and now my face and the itch is unbearable. Did you have a biopsy done? If you are in the Tampa area there is a great dermatologist that is familiar with DH otherwise finding a specialist in DH is not easy.
Becky
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Replying to:
Recently a rash that I had 2 years ago came back. When I first got it I went to 2 dermatologists 4/5 times and they never figured out what I had. All the medications they gave me didn't work, and eventually it went away. It went away, but has come back. I am currently taking the medication they gave me last time (the stuff I was taking when it went away), but it doesn't seem to help no matter how much I refrain from itching, it keeps spreading. It's on both of my forearms, both of my legs around my ankle, and now it's starting around my thigh. I think it might be DH but I'm not sure. It's blistery but they're not big blisters, it itches like crazy especially at night (it wakes me up several times a night), and it's sort of "wet" looking. I've been taking anti-histamines thinking it might be an alergy, using cream, and lots of sarna. Someone make it go away! Is there any directory for specialists who know more about these skin conditions, other than my normal derm?
Please take a look at this and tell me your thoughts 
http://home.earthlink.net/~mattsinclair/rash1.jpg
http://home.earthlink.net/~mattsinclair/rash2.jpg
http://home.earthlink.net/~mattsinclair/fresh-rash1.jpg
http://home.earthlink.net/~mattsinclair/fresh-rash2.jpg
Thank you!
Traci,
It's really difficult to tell if a person's rash is DH. We're not specialists and even specialists have to do a very specific skin biopsy to ascertain whether you have DH or not. The pictures, coupled by the fact that the rash itches like mad, mean that I wouldn't rule out DH but you will need to seek out a dermatologist who is familiar with the condition to get a definitive diagnosis.
You could also ask your doctor if he is prepared to do blood tests for coeliac disease as DH sufferers also have this. Unfortunately, not all blood tests are positive because many DH patients only have very mild intestinal damage.
I hope this is helpful.
Annie
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Replying to:
Traci
you sound like me. I had the rash 3 years ago it cleared up with dapsone and now is back worse than ever. It is on my legs, thighs, back, chest and now my face and the itch is unbearable. Did you have a biopsy done? If you are in the Tampa area there is a great dermatologist that is familiar with DH otherwise finding a specialist in DH is not easy.
Becky
--- --- --- --- --- --- --- --- ---
Replying to:
Recently a rash that I had 2 years ago came back. When I first got it I went to 2 dermatologists 4/5 times and they never figured out what I had. All the medications they gave me didn't work, and eventually it went away. It went away, but has come back. I am currently taking the medication they gave me last time (the stuff I was taking when it went away), but it doesn't seem to help no matter how much I refrain from itching, it keeps spreading. It's on both of my forearms, both of my legs around my ankle, and now it's starting around my thigh. I think it might be DH but I'm not sure. It's blistery but they're not big blisters, it itches like crazy especially at night (it wakes me up several times a night), and it's sort of "wet" looking. I've been taking anti-histamines thinking it might be an alergy, using cream, and lots of sarna. Someone make it go away! Is there any directory for specialists who know more about these skin conditions, other than my normal derm?
Please take a look at this and tell me your thoughts
http://home.earthlink.net/~mattsinclair/rash1.jpg
http://home.earthlink.net/~mattsinclair/rash2.jpg
http://home.earthlink.net/~mattsinclair/fresh-rash1.jpg
http://home.earthlink.net/~mattsinclair/fresh-rash2.jpg
Thank you!
i am in the tampa area. i ent back to the derm today and he took out a punch of skin and some blood. he thinks it might just be an allergic reaction. i hope all the crap he gives me works. ::whimpers:: what is the derm that knows bout dhs name? my derm says he doesnt think that i have it. i hope not, but then again... atleast i would know what it was. thats better than how i am now.
--- --- --- --- --- --- --- --- ---
Replying to:
Traci
you sound like me. I had the rash 3 years ago it cleared up with dapsone and now is back worse than ever. It is on my legs, thighs, back, chest and now my face and the itch is unbearable. Did you have a biopsy done? If you are in the Tampa area there is a great dermatologist that is familiar with DH otherwise finding a specialist in DH is not easy.
Becky
--- --- --- --- --- --- --- --- ---
Replying to:
Recently a rash that I had 2 years ago came back. When I first got it I went to 2 dermatologists 4/5 times and they never figured out what I had. All the medications they gave me didn't work, and eventually it went away. It went away, but has come back. I am currently taking the medication they gave me last time (the stuff I was taking when it went away), but it doesn't seem to help no matter how much I refrain from itching, it keeps spreading. It's on both of my forearms, both of my legs around my ankle, and now it's starting around my thigh. I think it might be DH but I'm not sure. It's blistery but they're not big blisters, it itches like crazy especially at night (it wakes me up several times a night), and it's sort of "wet" looking. I've been taking anti-histamines thinking it might be an alergy, using cream, and lots of sarna. Someone make it go away! Is there any directory for specialists who know more about these skin conditions, other than my normal derm?
Please take a look at this and tell me your thoughts
http://home.earthlink.net/~mattsinclair/rash1.jpg
http://home.earthlink.net/~mattsinclair/rash2.jpg
http://home.earthlink.net/~mattsinclair/fresh-rash1.jpg
http://home.earthlink.net/~mattsinclair/fresh-rash2.jpg
Thank you!
Traci
the dermatologist is Dr. Flynn. She is in with Dr. Ruth Hanno, they are located on 3oth ave or Bruce B Downs Blvd just North of UCH. Good luck to you.
Becky
--- --- --- --- --- --- --- --- ---
Replying to:
i am in the tampa area. i ent back to the derm today and he took out a punch of skin and some blood. he thinks it might just be an allergic reaction. i hope all the crap he gives me works. ::whimpers:: what is the derm that knows bout dhs name? my derm says he doesnt think that i have it. i hope not, but then again... atleast i would know what it was. thats better than how i am now.
--- --- --- --- --- --- --- --- ---
Replying to:
Traci
you sound like me. I had the rash 3 years ago it cleared up with dapsone and now is back worse than ever. It is on my legs, thighs, back, chest and now my face and the itch is unbearable. Did you have a biopsy done? If you are in the Tampa area there is a great dermatologist that is familiar with DH otherwise finding a specialist in DH is not easy.
Becky
--- --- --- --- --- --- --- --- ---
Replying to:
Recently a rash that I had 2 years ago came back. When I first got it I went to 2 dermatologists 4/5 times and they never figured out what I had. All the medications they gave me didn't work, and eventually it went away. It went away, but has come back. I am currently taking the medication they gave me last time (the stuff I was taking when it went away), but it doesn't seem to help no matter how much I refrain from itching, it keeps spreading. It's on both of my forearms, both of my legs around my ankle, and now it's starting around my thigh. I think it might be DH but I'm not sure. It's blistery but they're not big blisters, it itches like crazy especially at night (it wakes me up several times a night), and it's sort of "wet" looking. I've been taking anti-histamines thinking it might be an alergy, using cream, and lots of sarna. Someone make it go away! Is there any directory for specialists who know more about these skin conditions, other than my normal derm?
Please take a look at this and tell me your thoughts
http://home.earthlink.net/~mattsinclair/rash1.jpg
http://home.earthlink.net/~mattsinclair/rash2.jpg
http://home.earthlink.net/~mattsinclair/fresh-rash1.jpg
http://home.earthlink.net/~mattsinclair/fresh-rash2.jpg
Thank you!
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