The Dermatitis Herpetiformis Online Community

The DH Online Community Forum

This message board is now read-only and has been superseded by the new forums which can be found here.

The DH Online Community Forum
Start a New Topic 
Author
Comment
View Entire Thread
Re: dapsone question


I had a bad reaction to Dapsone due to an allergy to sulfa. My DH rash did not subside until I was GF for six months. I did have problems with 'hidden gluten' in restaurant meals. Also have had to be vigalent re: ingredients in vitamins, over-the-counter meds and other Rx meds. I even had to give up the waffers at Communion in Church. But I have been sympton free for about four weeks, which is the first time in three years I can say that. I wish you the best....

--- --- --- --- --- --- --- --- ---

Replying to:

Ok, I just started on dapsone today, 50 mg a day. How long will it take for the DH to start to disappear? I'm also following a GF diet and have been for 5 months now. I sure hope the DH clears up fast

Re: Re: dapsone question


Thank you for your good wishes! I've been on the dapsone for 6 days now (50 mg) and the rash is still with me. My doctor called me on Saturday with my liver blood work and apparently my AST was twice as high as it should be already. And I had that blood drawn the day after I started on dapsone! I have to get it re-drawn on Thursday and if it's NOT as elevated, he will let me increase the dose. I'm so miserable and have had this for 3 years. I sure hope it gets better soon. I'll suggest the sulfapyrididine if this doesn't work. I'm going on a big trip to Atlanta, GA in July, and I'd really like this be cleared up by then




--- --- --- --- --- --- --- --- ---

Replying to:


I had a bad reaction to Dapsone due to an allergy to sulfa. My DH rash did not subside until I was GF for six months. I did have problems with 'hidden gluten' in restaurant meals. Also have had to be vigalent re: ingredients in vitamins, over-the-counter meds and other Rx meds. I even had to give up the waffers at Communion in Church. But I have been sympton free for about four weeks, which is the first time in three years I can say that. I wish you the best....

--- --- --- --- --- --- --- --- ---

Replying to:

Ok, I just started on dapsone today, 50 mg a day. How long will it take for the DH to start to disappear? I'm also following a GF diet and have been for 5 months now. I sure hope the DH clears up fast


Copyright © The Dermatitis Herpetiformis Online Community. All rights reserved.