Hi I am doing the gluten free diet as far as i can properly but I still itch badly even on areas where the spots have not yet appeared.I am rather upset that after saying i have D.H. the hospital thought itwas another rash they have taken me off my tablets which i mi...
Due to the changes that Bravenet have recently made, I have purchased hosting and will be moving the web site to it's current domain name of http://www.dermatitisherpetiformis.org.uk.
This means that if you are still accessing the site through www.dhcondition.plus...
I was diagnosed with Celiac Disease many years ago, but not until my 20s did I get blister-like, fluid filled bumps on the sides of my fingers (usually the sides toward the thumb of my 2nd and 3rd fingers). I would itch them until the clear fluid escapes, then they...
Hi,
I read an article online-I think by doctor Zone. It stated that MOST of the time that DH is caused by gluten sensitivity. Is there anything else BESIDES gluten that is known to cause this rash and the results on immunoflorescent biopsy? Thanks!
Tracie
Can anyone tell me of a medicine that is a
substitute for dapsone. I live in The Yukon
Canada and the drug is unavailable here,
and I have been told that the drug co.s
no longer manufacture it because of
decreased demand.
Any help would be apprecia...
The Links Xtra page has now been reformatted and moved across to my web space. New submissions can be made by completing the online form at the bottom of the page.Links XtraAnnie
I've reorganized the photo library. It now consists of static pages lodged in my usual web space rather than with Bravenet.Submissions will have to be emailed to me from now on, rather than uploaded online but, apart from that, I think the pages are an improvement.Ch...
Hi, Bravenet, in their wisdom, have decided to play around with the services and I've spent the past couple of days trying to sort out the mess.Anyway, could someone using Netscape Navigator version 6 please tell me if this forum and the guestbook look OK in their br...
I wanted to pass along a great discovery I made for OTC topical relief for rashes - sunburn / burn cream / spray with benzocaine or lidocaine. It works much, much, better than any kind of steroids and I usually apply it around 2 times / day. My favorites have been...
Hi! I have been diagnosed with DH since 2000 but I haven't taken any medication for it mainly because my husband and I wanted to start a family. We now have 2 boys and my breakouts from DH are horrible. However, when pregnant my skin was very clear and it didn't seem...
hi... patient has been having rashes for 1 month. had other symptoms like fever and body aches. dr said it's not herpes but might be bacteria. after taking medication, rashes still persist. dr has taken bld sample for other test but at the meantime said it might be D...
I've been getting a rash on the middle finger of each hand 3-4 times per year for the last 5 years or so. I finally wen to the dr who though it might be contact dermatitus. I've been reading about CD when I found info about DH. I find it interesting that I get this r...
My father has DH. He is in his mid 80's. He takes dapsone and maintains as gluten-free diet as possible. However, he is currently experiencing a flare-up of the itchy blisters. Any ideas about what causes these flare-ups??
If you have been diagnosed with DH by a medical professional and have any photographs of the rash, which you don't mind sharing, I'd very much welcome them for the Photo Library. Be assured that your personal details will remain confidential.
Photo Library
Th...
The new poll question is:
"DH sufferers, do you feel the need to avoid toiletries, cosmetics, etc. containing gluten?"
This is an interesting one of which I'm not sure how the vote will go. The medical science says that this shouldn't be an issue but many peo...
hi has any one else ever had an EEG.I have to go for one because i suffer from black outs not very often but i still get them and it is not a nice experience.i have nearly got killed once because I blacked out crossing the road.I had to have abridge as I had knocked...
I have had a skin prob for 2 months and been diagnosed everything but DH, went to quacks again, sick of itching, its on elbows,shoulders, inside legs, and back, small spots at first but on shoulder large clumps of it, doc looked in book and found DH i go to dermatolo...
Hi
Can anyone tell me how long after eating gluten would you expect to see DH spots appear, after being GF for a year except one slip up 4 months ago.
Jenny
So it's official. I do have dh and I am awaiting rx confence results. My GI guy ,as he said, is excited about this because we may finally have a dx. I,to feel happy to know that maybe I have a conclusive dx and possibly a plan for tx. God knows, I can't continue f...
One of the side effects listed from taking Dapsone is "nerve Damage" .Evidently, tingling sensation in fingers, hands and legs maybe a symptom of this.Does anyone know whether this is permenant damage and how serious it can get as I am experiencing some "tingling"?
Hi is it just alittle bit of gluten causes a flareup?I am having spos on my back and they really do bleed.i csure have not had hardly any gluten and only eat at home now.So it seems to me I cannot have any gluten at all noteven one tiny morning biscuit.two weeks ago...
Hi Annie, and everyone I have been trying to find my way through a lot of coeliac digestive problems.Like Annie I also ben told in the past that I have I.B.S. it is possible to have chrones and many other bowel problems as well as bing a coeliac.I still do not have a...
Annie
At the weekend I made a very big mistake - I mistook a sainsbury organic loaf for a freestyle GF loaf in the freezer and had 7 slices. Packaging almost identical. Thought it tasted to good. (My rule of thumb with GF foods is that if it tastes good - it cant...
Ok, I just started on dapsone today, 50 mg a day. How long will it take for the DH to start to disappear? I'm also following a GF diet and have been for 5 months now. I sure hope the DH clears up fast
Hello Everyone,
I have Celiacs Disease and I was wondering if I may also have DH. I have had these itchy rashy bumps on my armpits for maybe a little over 2 years now and they come and go. I noticed that now that I eat GF, they seem to go away. But I accidentally...
It has come to my attention that the form to have the 'What is DH?' article sent by email wasn't working properly. I've updated the autoresponder and all should be OK now.
DH article
My 8yr old daughter who has had a raised patches of red itchy rash all over her body,she also get recurrent skin infection in the form of boils on her un effected skin. Her Doctor has suggested that we try Dapsone as she has lived on antibiotic for the last 4yrs.Can...
Recently a rash that I had 2 years ago came back. When I first got it I went to 2 dermatologists 4/5 times and they never figured out what I had. All the medications they gave me didn't work, and eventually it went away. It went away, but has come back. I am curr...
Hi Annie and everyone, I am a bit worried no very worried abouy my Juvela prescription being really safe and gluten free as I have just read aboutit on Yahoo that it was not safe? does anyone else know if it is safe in britain? There was a warning alergy allert conta...
I need help. For the last 3-4 years, I have had problems with perirectal abscess, diarrhea, and now an incredibly itchy reddened rash. My colon biopsies are negative for Crohns and positive for Collagenous Colitis, a commonality to Celiac disease. My duodenal biop...
Annie
I picked up a copy of the consise oxford textbook of medicine at the weekend and read thro the section on DH treatment and came across an old but apparently effective alternative treatment:
"Steroid treatment is strangely ineffective and heparin oddly eff...
I am new to this site. I was diagnosed with DH about 3 years ago. Had been taking dapsone with good success until about 1 year ago - my rash has worsened, I have it all on my legs and chest. the itch is so intense I have been ripping at my skin sure to be scaring,...
Common Food Sensitivity Linked to Painful Peripheral Neuropathy
NEW YORK, May 27 /PRNewswire/ -- The Neuropathy Association -- A link between Peripheral Neuropathy and Celiac Disease was reported by physicians at the Weill Medical College of Cornell University and...
All you UK DHers, please take the time to complete the latest online survey that Coeliac UK have issued. I've put as the single most important thing that CUK should be doing is more awareness amongst eating establishments and the general public about CD and DH in or...
I've been recently diagnosed with DH, and started on Dapsone a few weeks ago. I've also been taking synthroid for a few years for hyperthyroidism. I was fine for a while, very glad that my rash was clearing up. But now I feel ill all the time - tired, cold, dizzy...
I was diagnosed w/ DH a little over 2 months ago, went on Dapsone immediately afterwards and started a strict gluten-free diet. My doctor took me off Dapsone 2 weeks ago (I developed anemia) and my rashes have returned. Argh! Steroid cream does not help much; I ha...
I had a DH when I was 1 1/2 years old and since then, I have no symptoms (I am 31 now). But since then, I did not receive any vaccinations, I don't know why. I wonder why, and whether everyone else is in the same situation. I am applying to the college and they ask f...
Prometheus Laboratories Introduces Genetic Test to Differentiate Causes of Lactose Intolerance
SAN DIEGO, May 19 /PRNewswire/ -- Prometheus Laboratories Inc. today announced that it is introducing the first genetic test to help physicians identify a specific genet...
I have had a scalp problem since last Autumn and my doctor does not know what it is. I have had itchy, painful lumps that if I scratch and I have to, become very sore 'craters'. I have had infection in them in the past and at the moment my nails are constantly raking...
Just to let you all know it's official.
National Coeliac and DH awareness day was officially made on the 19th May 2003 for May 20th every year.
Here is the new website, because it was only made official yesterday the site is obviously still under construction but n...
Help, I have celiac and DH. I have beeb gluten free for 2 years and off Dapsone for over 1 year. I recently had a baby but while in the hospital I was given food containing gluten. I now have DH symptoms that are so severe that I can't sleep (the itching and pain is...
Hi all,
I am wondering if any of the women with DH have flares right before their menstrual periods? I get a severe flare up 3 days prior regardless of what I have eaten. I have been gluten free since February with some goof ups(unintentional) The medical colle...
